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We are the Cann family,
there is Jim, father, husband, thatcher and bike mechanic. Myself, Sam
- wife, mother and labourer for Jim. Then there are our four children:
Calamaty-Jayne who is 15 3/4, currently taking her GCSE's at Queen Elizabeth
school Crediton.
Haby-Blu who is 14 1/2 and is studying to take her GCSE's next year at
the same school.
Capabilaty-Jack who is 8 1/4 and is at Cheriton bishop primary school.
And last but by no means least is Bow-Jango who is 7 1/4 and suffers from
Cystic Fibrosis, he also goes to school in Cheriton Bishop with his brother.
We live on a small holding with some animals. We milk a cow called Truly
Scrumptious and have a pot belly pig called Elly, who came for a holiday
and decided to stay after foot and mouth, we have some sheep and a ram
called Burty, a baby turkey called Perky, some horses: Megan, Misty and
Zac, some chickens, guinea fowl and geese, two dogs, one cat and a guinea
pig called Holly that arrived at Christmas. Capabilaty loves to cuddle
Holly and when he's not cuddling her, he's cuddling the turkey, who likes
to sit on your arm when reading a book by the fire.
We do lots of activities together, our favourite is cycling. I have always
liked to have a bicycle, as a form of getting down to the field and places,
when the girls were about 4 years old we got them BMX bikes and started
cycling a bit ,and began to upgrade our bikes, then I became pregnant
with Capabilaty and my parents brought us a special baby seat(called a
Bo bike seat) that went on the front handle bars, with a wind screen to
protect the baby. When Capabilaty was about 3 months old he started to
ride in it and really enjoyed it, because he could see where he was going
and I could keep watch of him between my arms. We then moved to the farm
where we are now and while I was pregnant with Bow we would cycle the
girls to school on their bikes, I had Capabilaty on the front of my bike
with Bow in my tummy, which was a little awkward, as there wasn't much
room left between them, but it was so nice to be able to take them out
on the bikes.
Then Bow was born in the early Autumn and we stopped cycling for a bit,
then in the spring we were off again this time on the way to school, the
girls on their bikes and me on mine with Bow now in the baby seat on my
handle bars with the windscreen,and Capabilaty on a child's seat on the
back, it was the only way I could get the girls to school as we didn't
have two cars at that time, but I must say the children really enjoyed
cycling that way, and it beats pushing a pram on a 4 mile circuit, twice
a day.
It was that spring that Bow was diagnosed with Cystic Fibrosis. It was
such a shock for us, we knew he was not well a lot of the time, we even
thought perhaps he has a wheat allergy or something like that, he was
always having colds and sounding so chesty. We kept going to the doctors
and he had antibiotics, foul nappies and an appetite like a horse. Luckily
I kept feeding him 3-4 weetabix a morning for breakfast, I had never known
a baby with such appetite, but because his digestive system was not working
properly he was not getting the nutrition he needed, so twice as much
food needed to go through to get enough, so he never actually looked a
sickly baby which was another reason why it wasn't picked up sooner by
my GP.
After 2 admissions to hospital, pneumonia and a collapsed lung, he was
diagnosed by our main man now, Doctor Patrick Oades at the Royal Devon
and Exeter Hospital. He attends regular check ups at the Cystic Fibrosis
Clinic, we see a nurse, dietician, physiotherapists and our consultant,
so we are now in good hands.
Bow has to have pat pats (physio) on a tilted bed, which is
giving him postural drainage, he has this every morning and evening each
day, but when he is unwell he can have it up to 6 times a day, trying
to keep his lung as clear as we can, to prevent infection from taking
a hold and doing damage to the lining of his lungs.
He also has to take quite a lot of medication, firstly he has inhalers
, a steroid inhaler twice a day after physio and bricanyl inhaler before
physio, some times a nebulizer also to help break down the phlegm in his
lung before doing pat pats, which helps to get it out. He has a cocktail
of vitamins to make sure he is getting all he needs, because of his poor
digestion. He is permanently on antibiotics, well once he came off them
in the summer for 2 months, but is back on them now, due to infection.
When he eats anything he has to take tablets to break down the food in
his gut because his pancreas ducts are blocked, and the enzymes dont
get released to do this job. Without these tablets to aid digestion and
absorption the full nutritional value would be lost.
Despite all of this, Bow is one of the fittest young boys you could come
across, his disease has never stopped him from doing all the things he
really likes doing, being out side and active. He has been riding a bike
since he was 3 years old. When his brother learnt to ride a bike at 4
years old, Bow was watching and wasn't going to be left behind, he picked
up the other bike and got on and scooted round the tarmac, before the
afternoon was out the pair of them were riding bikes, we never bothered
with stabilisers, they just hinder children, it only takes a minute to
learn balance, then a small while longer to trust in themselves and away
they go, no stopping them then.
Well that was it, from then on cycling has been a very large part of our
lives. The summer of 1997 we decided we should take special time out.
Life is for living and we want to do as much as we all can together, so
having 4 children and not a large budget, cycling seemed to be the best
idea. We love camping and cycling, Cornwall was a beautiful place and
not far away. We have a great friend called Jenny, she would hold the
farm, we waited for some good weather, got all our panniers packed, as
much medicine as the doctors said we would need, we had got a brilliant
gadget to go on the back off Jim's bike, which was a wheel, seat and handle
bars for Capabilaty to ride on he was 3 1/2 and Bow was 2 1/2 and he sat
on the front seat on my handle bars with his windscreen. We all carried
panniers on the back of the bike, Calamaty and Haby 11 and 10 carried
sleeping bags and cloths, I carried the tent, Jim took bike repair , cooking
equipment, food and any thing else we could possible need. A pillow was
soon to be very important because a 2 1/2 year old still had an afternoon
nap, so I put it on the handle bars and Bow could rest his head on it.
Capabilaty also sometimes wanted to sleep so we swapped, he still fitted
on the seat, but Bow was very young to go on the Tag-a-long (that is what
it was called) so we had to really emphasise how sensible he had to be,
well he loved every minute of it, even though his feet couldn't reach
the pedals, he thought it was great fun. Well I could go on for ever about
what a fantastic holiday it was, we swam when we found a beach or a pool,
we got through 2 bottles of suntan lotion because the weather was so good,
the tent was perfect and we cycled from Petrokstow, Devon down to Bodmin
out to the coast all the way to Lands End and then along the south coast
as far as Fowey. The weather started to change after about 10 days and
300 miles, so we decided to get home, poor Jenny thought we weren't coming
back, we had been away for so long. It really was a wonderful time , we
managed to do pat pats in the tent and all the medication was fine and
the children were so happy and a lovely golden shade, it looked like we
had all been to the Caribbean.
That was it, the only way to travel with children, it was such an adventure,
we just had to do it again. In 1999 we went to France, took the car to
Plymouth and left it there. We had everything we needed with us even a
letter from my GP just in case we needed a hospital although we never
did. This time the boys were 5 and 6 and they had their own bikes, so
the Tag-a-long wasn't any good, we had now found a gadget called a Trail-gaiter,
which was like a tow bar, you put it on the seat post of the adults
bike and then to the handle bar stem of the child's bike and it lifts
the front wheel off the ground. So the boys can cycle sometimes and be
towed if they are tired or we have a big city to go through, it was perfect,
a little wobbly to start with, cycling on and off the ferry was scary,
but it wasn't long before we were out to the coast of Brittany and they
could be let free, blue sea white sand it was perfect, we had 10 days
and again cycled about 300 miles, it was an even bigger adventure being
in a foreign land. The rain did soak us one day, even our passports were
wet, all our sleeping bags, clothes tent - everything. We were very lucky
and managed to cycle to a holiday camp that had one spare caravan to bed
down in . The children's wet faces lit up when they saw we had a caravan.
We went on to have 3 more lovely days cycling before returning on the
ferry home. We had felt a little nervous going abroad with no car or any
sort of support, not only with 4 children but one with Cystic Fibrosis,
when we got back, it was such an achievement.
So in 2000 we said an easy holiday this time so we took them to Holland.
Drove to Harwich, left the car and cycled on to the ferry, again. We had
Trail-gaiters, a bigger tent and all our own sleeping bags, because trying
to get them all to sleep under two large open ones in France wasn't going
to work now, they are getting quite big. Holland was brilliant for cycling
as you can imagine, having your own roads and signs was brilliant, camping
was good, the 20 mile dyke in a head wind took some peddling, Haby did
say she is never cycling again with us at that point, Capabilaty had to
go on the trail-gaiter, Calamaty just kept on peddling and Bow wanted
to race the whole way, he was at least a mile a head of me and I still
couldn't close the gap, he was the first to complete it, later at the
camp site he was still buzzing around on his bike. We clocked up 325 miles
in 8 days. One of the days Bow said he didn't want to be towed until he
had cycled 30 miles and he did, which took him until lunch time, he was
5 years olds then. It was a good holiday but a little to easy for my lot
they almost got bored. Haby said she would only come if we went to France
again.
Well 2001 we had a bad winter with foot and mouth, not a lot of cycling
done, lots to do on the farm, Bows health still brilliant (touch
wood) so in the summer we decided to do lots of cycling round here. Jim
and I cycle with a group called Bashers, TVPB, (Teign Valley Pedal Bashers)
Its like Hashing but on bikes. (Hashing involves a hare laying
a trail of sawdust dots which the rest of you then attempt to follow as
fast as you can on foot). We as a family have hashed for about 2 years
now, Capabilaty and Bow both do it as well , Bow really likes his running
too. The bashing is the same but on bikes, and on the odd Sunday we would
all go and I would take the boys on a slow route, they could do the distance
but not the speed, but as the summer went on the boys came on the main
rides and now bash on and off road as good as the rest, I am amazed how
much they have come on this summer. 'Under', one of the men who bashes
with us wrote an article on my whole family because of how well we cycle.
In the article we said we would do the End to End challenge
one day, and a friend of mine said do you know the youngest child to cycle
the end to end challenge is 9 years old. Well this got me thinking, are
we really that good? Bow is 7 and I know he could do it at his pace, and
what a great adventure it would be, and what about the Cystic Fibrosis
fund raising angle, that is when I thought Game On - here is a challenge
we have got to have a go at, Bow could even get in the Guinness book of
records !, so that is how the CF3 was
born.
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